wolster Posted June 6, 2023 Posted June 6, 2023 Only just caught up with this thread, Grumps. An occasional visitor these days due to business restructure. Really pleased to see the encouraging news and the great support and information you are receiving here, mate. And no doubt the great performances of Port will be giving you some much needed joy 1
Grumpy Posted June 6, 2023 Author Posted June 6, 2023 Thanks Wol. Now Georgina my partner has just come down with covid. Im trying to be very carefull around here because of my lack of immune capabilities We are both trying to look after each other as im having an off day too because of the chemo. She looks worse than me though
Tony M Posted June 7, 2023 Posted June 7, 2023 I trust you are on anti-viral medication, Gary? If not, you need to be ASAP. 3
Grumpy Posted June 7, 2023 Author Posted June 7, 2023 1 hour ago, Tony M said: I trust you are on anti-viral medication, Gary? If not, you need to be ASAP. No im not Tony. Too crook to think at the moment
Tony M Posted June 7, 2023 Posted June 7, 2023 (edited) You need to call your GP first thing tomorrow and get the script faxed (yes, they often still use fax!) or emailed to the pharmacy. Hopefully a neighbour, friend or family member can pick up and deliver it. Your GP and/or the haematology/oncology clinic should be able to help to make it happen but you have to ask. No health professional would want a patient on chemo to cope with Covid without antiviral medication. Not meaning to be alarmist but antivirals are important to help stop you getting much crooker. You don't have to think too much about it - just phone, tell them what you've told us and ask for the help you need. Edited June 7, 2023 by Tony M 9
Keith_W Posted June 7, 2023 Posted June 7, 2023 I agree with Tony. Call the clinic tomorrow and get the medication. 6
Grumpy Posted June 8, 2023 Author Posted June 8, 2023 Tony and Keith, thank you for your info. I have a hotline to the haematolgy - cancer department at the RAH and i spke to them this morning and they sent a email script to my local chemist. They indeed said it was needed because of my issues. Thanks again to you both. 12 1
Darryl Posted July 24, 2023 Posted July 24, 2023 How are you travelling @Grumpy You’re often in my thoughts. Hope things are going okay 1
Grumpy Posted July 24, 2023 Author Posted July 24, 2023 1 hour ago, Darryl said: How are you travelling @Grumpy You’re often in my thoughts. Hope things are going okay G'day old friend, I'm doing ok, - lost my hair ,but worst is the loss of my beard. Ive also put back most of the 21 kgs l lost when i first got crook. Another chemo session tomorrow which hopefully will be my last ( depending on scans etc later ) Cant wait to get back to normal life and perhaps a beer which l havent had since May 2022. Thanks for asking Darryl 3 1 4
wolster Posted July 26, 2023 Posted July 26, 2023 @Grumpy At least your footy team will be giving you pleasure, Grumps. shoe-in for the top four, I reckon
Grumpy Posted July 27, 2023 Author Posted July 27, 2023 Finally had my very LAST chemo session on Tuesday. Now just have to have a PET scan in a month to see how the chemo dealt with the lymphoma. Lots of congratulations from the nurses at the RAH made me a little emotional, but hey, no more chemo. Maybe some maintenance every 2 months over 2 years if the scan shows up any traces of cancer in the lymphnodes Feeling better mentally today. Maybe a bit of vinyl spinning over the weekend will improve thing even more. Cheers 11 1
Keith_W Posted July 27, 2023 Posted July 27, 2023 You would look pretty different without that massive Santa Claus beard, Grumpy! Was the mid-chemo PET OK? They normally do one after the 3rd cycle (they use this to decide if they should give you 6 or 8 cycles). 1
Grumpy Posted July 27, 2023 Author Posted July 27, 2023 1 hour ago, Keith_W said: You would look pretty different without that massive Santa Claus beard, Grumpy! Was the mid-chemo PET OK? They normally do one after the 3rd cycle (they use this to decide if they should give you 6 or 8 cycles). G'day Keith, only PET scan was before the spleen op. My blood works are looking fine. BTY my diagnosis was B Cell lymphoma (NHL) (DLBCL) ? Thank you for your input Keith
RockandorRoll Posted July 27, 2023 Posted July 27, 2023 Just caught up on this whole story. Good to hear you are on the mend Grumpy! 1
Grumpy Posted July 27, 2023 Author Posted July 27, 2023 6 hours ago, Darryl said: I’ll have a beer for you mate That would be nice thanks Darryl. I'm not missing the beer so much as the social times that include the beer. I have hardly any real taste at the moment and most things l eat taste like bitter water and the nurses kept telling me that the beer will taste pretty bad too if and when l finally have one. 2
Grumpy Posted August 26, 2023 Author Posted August 26, 2023 (edited) 5 hours ago, muon* said: Any updates, Gary? How are you feeling? G'day and thanks for asking. Im doing ok, but ill know more after a PET scan on Monday morning. Ive got my fingers crossed that the scan will show that the chemo has done its job. Edited August 26, 2023 by Grumpy 5 2
muon* Posted August 26, 2023 Posted August 26, 2023 2 minutes ago, Grumpy said: G'day and thanks for asking. Im doing ok, but ill know more after a PET scan on Monday morning. Ive got my fingers crossed that the scan will show that the chemo as done its job. You can count on bucket loads of positivity for the results from us lot too In the right corner the winner! Grumpy! 3
wolster Posted August 28, 2023 Posted August 28, 2023 Not sure I can actually love a Port Adelaide supporter but wishing you all the best, Grumps 1 2
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